My last visits to my gastroenterologist look like I have everything in the norm, nothing hurts me, I should soon get pregnant and … „Are you considering the amputation of your anus? “ Why the hell should I think about it when I’m not having any issues now?Continue reading “Why does everyone want to amputate my anus? Tereza Nagyová”
Well my dears, what can I say, it’s not a hit-parade. Especially as I broke my hand before Christmas, the ground was super slippery, but what can be done. I just wanted to get it over with. Continue reading “Ostomate and a broken wrist”
Wound healing is a big issue for me. Since my Crohn’s started, I have consistently dealt with abscesses and fistulas. Septic wounds, which quite fundamentally complicate life, hurt a lot and curing them lasts a long time. Last year I solved a complication of 4 months with parastomal abscess that has become a fistula. Continue reading “Why it is important not to close your eyes from complications, Tereza Nagyová”
What I found out at the Nordic Ostomy Association conference in Finland
Thanks to starting my project for ostomates I had the honour to accept the invitation of the European Ostomy Association to a meeting of the Nordic countries held in Tampere, Finland. I did not have an intended role at the meeting, and therefore I was very curious what awaits me… Continue reading “What I found out at the NOA conference in Finland, Tereza Nagyová”
I was sitting at a Nordic meeting of Ostomy Association (NOA) in Finland and was listing to a lecture of local ostomy nurse. She explained how she helped prevent an irritation around the ostomy for her new patient. She just called and asked how he was doing. After a while he confessed that the surrounding of his ostomy is red, began to bleed, something was wrong. She immediately invited him to her office and chose new aids. Issue got resolved there and then. Continue reading “A Proper Ostomy Nurse, Tereza Nagyová”
Are you lazy? I’m awfully lazy! Fortunately, I have a dog that is guaranteed to kick me out of bed every day. Sometimes it is a pain to walk 3 times a day. But I never regret my decision. If I didn’t have him, I would for sure become a part of the bed while suffering my worst days. It is terribly easy to stop with any activity when you are not well. At first, it is really impossible, later one gets lazy. I was also scared in the beginning to travel anywhere by myself. What if I suddenly get to the bottom of my energy level and I get stuck in the middle of nowhere, without a car or a toilette? Continue reading “Go for sports!, Tereza Nagyová”
We don’t talk about feces. Officially, everyone smells like lilies, or doesn’t do it at all. But everyone stinks, logically does an ostomate. The ostomy did not change anything. Just what was hidden and solved in pants, suddenly shows on belly surface. Continue reading “I have an ostomy, I Stink #FakeNews, Tereza Nagyová”
There they are, two lovely ostomates sitting happily in a park, absorbing in all the sunlight, throwing sticks to their dog. Suddenly runs in a homeless guy, grabs his expensive leather jacket, and off he runs again. Ostomates start running, heavily breathing giving up in about 150 meters with severe muscle cramps.
In May of 2017, as I was climbing home by the stairs, I had the feeling that I needed to go urgently to the WC. I arrived, and got into service thinking “little diarrhea.” When I finished and looked at the presumed diarrhea, I got scared, it was not so: it was blood, and filled the toilet bowl.
I remember watching all different kinds of ostomy bags in proctology ambulance. I could not imagine that such monstrosity should be attached to my stomach. I thought nobody would like me walking naked around the apartment with a poop sack. I secretly cried in the night, hoping my intestine would hang on. Continue reading “I have an ostomy, I am no longer beautiful #FakeNews, Tereza Nagyová”