We invite you to read the new issue of ASPIIR newsletter: see the attached pdf document.
Fragments of the information presented to the ECET:
- June 2019
After opening the event, the ECET board presented the programme and welcoming the participants.
- Luisa Salani, Italy – Caring gestures and thoughts from the voices of nurses – about a study and its phases: Starting point – A qualitative phenomenological study : 340 nurses – Method and data analysis – Caring for the other: dedicated time, paying attention, respecting other, trying to establish relationship with patient, satisfying the patient’s needs, being concerned with the emotional decision etc.
- Taking time for caring gestures and words – in the daily practice nurses have to decide to which kind of patient dedicate more time
- Paying attention – is the first caring action. Nurses should have an open mind..
- Acting with delicacy, Touching patient’s body – a wide range of caring actions emerged from nurses’ stories
- Being on the alert: nursing surveillance – while I was giving the medication I spoke to him ( patient) and I could feel a strange way of breathing , so I asked himself if he was having problems.
- Impacting on context to facilitate the act of caring.
Caring from Italian nurses’ perspective: it is a practice carried out through competent actions and willingness to intentionally take care of the patient. It involves an international and prompt care. Comparing our results with international studies. Caring generates caring – to support the ethical tension that nurse caring requires in contexts exposed to continuous suffering and to the cure of incurability.
- How research is helping or should help caring / taking over nurses. Ermellina Zanetti,
- Experience a relationship of closeness with nurses
- To be informed
- Receive a continuous attention ; “caring for” behaviors that indicate to patients that nurses “care about” them.
Nurses – patient interactions: Virtually all nurse-patient interactions could be categorized into one of the following areas:
- Getting to know each other
- Translating (explain, informing etc.)
- Expert compassion (includes genuine concern ad a “ connection”)
- Patients’ concerns focus more on the availability of a nurse to attend to their specific requests than on “closeness’ with a nurse
- When nurses are readily available to “care for” patients this can potentially result in patients believing that nurses “care about” them
FROM NURSING SCIENCE TO PATIENT NEEDS: A LONG JOURNEY
Unversita degli Studi di Firenza, Mario Del Vecchio
Some fundamental steps:
- Nursing science
- Nurses capabilities and skills
- Nurses number
- The roles that nurses play and the tasks they perform
Four priorities in FNOPI ( 2017) document (Italian document):
- To expand the scope of practice
- To practice in a safe environment:
- To practice in full partnership with physician and other health professionals/ high quality in multi-professional team
- To be open to and ready for the future: in a changing world the choices of the professional community should be more “pulled by the future” than “pushed by the past”.
Profession’s strategies – a wider perspective:
- In designing their strategies nurses, as any other professional, tend to adopt a strict disciplinary perspective
Pier R. Spena ( FAIS Italy) attended and held an welcome speech session, with entero-stoma therapist Natascia Tonarelli and Sarah Rusell ( Clinical Exercise Specialist)
Me + recovery programme
- Recovery after stoma surgery – what does recovery look like ? exercise guidelines and research; what do nurses say? What do the patients say?
- Ostomate , own experience surgery diverticulosis , no information about exercises for abdominal ;
Importance – confidence
What advice do you give your patients about physical activity and exercise after stoma surgery?
Confidence spiral: urgery, rebuilding confidence, increased activity, no loss muscle, less pain, more confidence.
What are the benefits of physical activity?
How much physical activity should you do?
Percentage of respondents NO meeting guidelines for physical activity (150 minutes of moderate activity per week).
Physical Activity after surgery with hernia
Patient Comments 2018:
- Need more advise about abdominal exercises “I wish I’d been advised and how to prevent them”
- I am scared to do exercise in case I get a hernia
- Exercises is so important in the recover process, But it is never discussed.
Do you think patients should be given specific information about physical activity? Patients answers – yes
Guidelines – Patients should be advised to commence core abdominal exercises 3 – 4 days post surgery
Exercise and cancer – exercise is safe – before, during and after treatment – it helps to combat side effects and reduces risk of recurrence, may help body fight cancer 7 aid treatment.
Everyone is different – people with stoma can make any exercise they want, Appropriate core /pelvic floor exercises , Regulate intra-abdominal pressure ( IAP)
Goals of me recovery (Sarah Rusell speaker)
- Return to normal activity , work and life soon
- Rebuild confidence – physical and mental
- Core muscle and pelvic floor function
- Empower – enable – focus on positives
- Increase physical activities
3. Natascia Tonarelli – Enterostomal therapist – Cisanello Hospital Pisa
Event in Pisa with the support of Convatec for patients for exercises, patients do exercises all together
After finding out about the “Me+ recovery” – patients have learned movements, started to do exercises etc.
25 JUNE 2019
Manuka Honey Workshop – Hydrocolloid containing Manuka honey as a first line defence in maintaining peristomal skin health.
Speaker: Dr. Duale Mahdi, research scientist
Why skin integrity is at the Heart of Stoma Care?
- Skin – the interface
Protection – mechanical impact, fluids, radiation, infection; thermal regulation; endocrine function/ Vitamin D; sensation
- Skins structure – formed by hypodermis, derma, epidermis – 3 lays
Structure of the Epidermis:
- Stratum Corneum Structure:
Key components: 1) Corneocytes contain keratin and compounds referred to as natural moisturizing factor ( NMF), b) Intracellular Lipid bilayer
Skin hydration ( moisture- associated skin damage)
Consequences of Moisture Damage:…(..)
- The pH of human organs is tightly regulated by acid- base homeostasis varying between 1 to 8
- “normal” pH skin is acidic in range of 4.1 – 5.8
- Skin pH bacterial growth in particular staphylococcus aureus which has an optimal pH of 7.5
Peristomal Skin Complication
– common – estimated to be approx. 70 %
– expensive – treatment cost for severe case of Peristomal skin complication
– is the flange simply an adhesive plate? It has a huge impact on peristomal skin protection
– why have an additive such as Manuka honey in the baseplate? = natural, safe ( ingestible), strong etc
High level of MGO are present in Manuka Honey from the nectar of the flower of the Manuka bush ( Leptospermum Scoparium) , indigenious to New Zeeland.
UMF trademark is giving for the original of the honey , on the content pure.
- Low pH, High sugar content, hydrogen peroxide,
- Reported benefits of Medicinal Honey ( anti-inflammatory activity, is used in wound dressing to stimulate and rapidly heal skin, used in burns etc)
Peristomal skin in study ( for flat appliances, not convex)
- 61 % saw improved peristomal skin and increased in their QOF
- 93% comfortable
- 88% felt secure
- 68% Improved or healed
- Honey is safe
- String positive clinical results
- Leading core research that will be continued to share
26 June 2019
Information about colostomy for people with limited health literacy, by NL
Development of information that helps doctors and nurses to give better explanations to people who are getting a colostomy, but are experiencing difficulty in understanding medical information.
- Desk research among ostomy nurses which showed that people with limited health literacy are getting less extensive information
- Simplifying existing texts in proper consultation with ostomates and stoma-nurses
- Providing the texts with simple medical illustrates
- Submitting the texts and drawings to people with limited health literacy.
- A set of colostomy-cards “colostomy after colon cancer” which are presented to ostomy nurses
- A training for ostomates and stoma-nurses about health literacy and communication
- Plans and commitment to develop more similar information in 2019.
The ILCO Serbia representative Filip Stokic has been to Brussels from 7th till 9th June in the hotel “Renaissance”. This years Annual European Congress of the coalition of cancer patients ECPC took place in Brussels.Continue reading “ILCO Serbia on ECPC in Brussels, 7th-9th June 2019”
The EOA Member Organization, Provence Stomie Contact, is honoured to announce the creation of l’Union des Stomisés du Grand Sud, France (the Union of Ostomy of the Great South) on May 3, 2019 in Avignon (84).
This Union brings together 13 associations (some of which are members of the EOA). The technical and scientific committee composes of 3 members.
One of our first actions is the celebration of National Ostomy Day on May 3, 2020.
Ostomy Day, celebration of the 40th anniversary of ilco Switzerland
Ilco Switzerland would be very happy to welcome you at their Ostomy Day and to their 40th anniversary on the 7th of September 2019.
You will find more information in the PDF document.
ASPIIR session at the National Conference of National Society of General Practitioners – “Family Physician Day”, 15-18 May 2019, Tg. Mureş.
About 3 years ago, we were addressing to the Romanian National GPs Society for the first time, in an effort to attract and integrate the family doctors in the management of patients with stoma, into multidisciplinary IBD teams in order to reduce the time for diagnosing the IBD or colon cancer in patients, from the moment of presenting the patients at the GP’s office till diagnosing him in a specialized center. We consider that the GP plays an important role after returning the patient to the hospital, as a chronic IBD-treated patient or ostomate.Continue reading “Working close with the General Practitioners to improve the knowledge about stoma care”
Workshop ASPIIR & GastRO Grup SNMF
Family Medicine Conference, 15th edition, Bucharest
“Delicate balance between science, art and communication”
March 30, 2019, Crystal Palace Ballrooms, Bucharest
After surgical intervention ended with a temporary or permanent stoma, in order to put the intestine at rest and allow to the inflammatory activity to get reduce or stop, the ostomates should be supported by the medical staff and nurses, as well as the family to learn to manage the new situation and the new way of life.Continue reading “The ostomate patient – truth and challenge in the practice of the General Practitioner”
CRAFT Timișoara, 17th – 18th September 2018
September 2018 has brought us new meetings with patients from Timisoara, western part of Romania, and medical staff as well.Continue reading “ASPIIR meeting with patients and Workshop on stomacare”
Provence Stomie Contact (France) is organising its first interregional congress for carers and patients in Avignon (France) on 3rd and 4th May 2019. The theme will be “Living with an ostomy”. Continue reading “Congress of Provence Stomie Contact”