It has been far more pleasureable to think about writing this message than the last one from March this year. Now that most countries are longing for the end of this epidemic that has more or less paralyzed our societies we need to take a deep breath and analyze the situation that we are in. We have all lost a few months of invaluable work and connections with our members have been somewhat strange. The computer and web have been growing in this context for the past years but suddenly they take over almost completely. No meetings and no close personal conversations have been possible in the past months. Hopefully all of us have been able to rise up to those challenges and provide service and consultations as close to requirements as possible.
At the age of 21, when I was a student at the Belgrade Faculty of Economics, I developed symptoms of ulcerative colitis, such as blood in the stool, disturbed bowel movements, diarrhea, abdominal pain, and a weak appetite. I lost weight, became weak, had a fever… No one in my family has ever had similar symptoms. When I asked the doctor what the cause of the disease was, I was told, “It is anxiety-based“ I lived a relaxed life, became a graduate student in economics, I was member of the folklore dance troupe, always always took care of my diet, I didnt smoke…
1. Visioconférence ‘Osons parler Stomie’ Elle aura lieu lundi 4 mai après midi via la plateforme ZOOM et sera animée par : Dr Laury Beaubrun-Diant, Docteur en Psychologie de la Santé, Chercheur Centre CERPPS Toulouse Martine Pagès infirmière stomathérapeute CHU Nîmes Chantal Vaurs, Patiente expert, Secrétaire de l’Union et Présidente de l’IAS Nord Dauphiné Myriam Teyssié, Patiente expert, Présidente de l’Union des Stomisés du Grand Sud (modératrice).
Do you remember the title from the president‘s message of January last? It was: „Please be there.“ Now it is very clear that we can‘t be in Garda in April as we had planned and prepared. The virus that has been plaguing the world has made it inevitable to postpone the EOA conference in Garda. That is a joint decision of the EOA-EC and FAIS. The vote of members has decided that the EOA conference will take place in April next year. The result was very clear, 19 out of 27 that voted decided on that.
remember how happy I was for a say-so on the third degree of disability and for
a nice pension. I was afraid the state would not help me and as a cripple I
would have to move back to my mother‘s. Phew! It turned out well and I got some
money. Unfortunately, not enough to live in Prague. My ability to work is
reduced by 70%. How do I solve it now?
Last time I wrote about the importance of putting
your feet up and taking a break. I wondered what was another crucial thing for
me on my way to health and happiness. And I immediately recognized a job there.
Because either we want or not we spend so much time in it!
I see a lot of interesting and talented people
around me who have a real potential to do or change something. And now I don’t
mean just career potential. Rather, people with a great potential to accomplish
something. Personally, I am very motivated by the stories of my handicapped
colleagues who are not stopped even by the insidious illness and they go on and
Finally preparations for the conference in Garda are almost over. We have had some last minute problems but they have been dealt with and are over. The registration forms for the conference and for the hotel will be sent to you shortly and are also available at the EOA website. I know that I speak for both the EOA EC and FAIS when I say that we hope to see as many of you there as possible.
World Ostomy Day is celebrated every 3 years in the beginning of October. The next will be October, 2021.
The idea of the World Ostomy Day was born in 1993 and its father is Professor Dr. Gerhard Englert who at that time was the President of IOA. The purpose of the day was to raise public awareness of the condition and improve the quality of life people with a stoma.
Each WOD has the new motto. Here is the list how it was over years:
Verfügbarkeit von Stomaartikeln – ein Grundrecht von Stomaträgern. Information über das Leben mit dem Stoma: Hoffnung für Stomaträger
Cooperation – Key to Ostomy Rehabilitation
Zusammenarbeit – Schlüssel zur Rehabilitation
Together into the next Millennium
Zusammen ins nächste Jahrtausend
Yes, we can!
Zusammenarbeit – gemeinsam sind wir stark!
Living life to the full
Voll im Leben stehen
Das Leben bewusst ergreifen / Eine helfende Hand reichen